hi everyone...
12/7/2004

We got to Bethesda last Tuesday afternoon. Spent all day Wednesday, Thursday and half of Friday. It was such a long week!! However, I am so so thankful and hopeful about this new drug...I will do anything to get this new treatment to work this time!! I can't express how badly I need this to do the trick. For now, Erik and I have decided to live and focus on each day, and not think too hard about tomorrow. It's incredibly hard to do, but focusing on everyday and loving friends and family and Erik and my mom and revy. There are so many wonderful things to be grateful for, I hope this is the one thing everyone remembers. I have many new little sayings but my favorite words now are "DO IT NOW" or "ADD A DAY - EVERYDAY".

This past weekend I stayed at my mom's after our trip. My amazing husband and his wonderful talented friends (so many I don't even know how many people helped!!) finished our kitchen. We had planned to do it when I had the third recurrence about 3 weeks ago. It just shows me how wonderful Erik is - that is why he has so many wonderful friends! You just have no idea how happy I am. Sunday night, my mom drove me home and we walked in and I just sobbed. Everything is so gorgeous!!! I will take some pictures when we are finished...stunning! A big big thank you for everyone.

Back to NIH December 21 til December 23 early morning and renting a car to drive to Erik's parents until the 25 or 26. After that I think we are going the 29th til the 5th January to Tulum Mexico were we went for our honeymoon. We don't want to wait as we never know. Then again back to Bethesda on Jan 6th evening and an mri on Jan 7th. That should be the day that we see if we have stable, decrease or growth. Very scary, but exciting as well.

Thanks again for all the well wishes and thinking of me. Erik and I feel very blessed.

Happy holidays...all my love, lori:}

« Back